Jackson Owen, born Friday, July 30, 2004

Sweet Baby J!
Jackson Owen

One day old!

 
Jackson was born July 30th, 2004 at 7:17 pm, via c-section. We did not know about his diagnosis before birth. At three weeks of age he was still not back up to his birthweight and having trouble feeding. His ped diagnosed him failure to thrive and ordered a chromosomal karyotype. When he was five weeks were told Jackson has trisomy 4p, inverted duplication. This basically means that most of Jackson's "P" arm on his 4th chromosome has been copied, inverted, and attached to the tip of that "P" arm. He has more genetic material on that chromosome. Jackson has been very healthy, with no serious medical issues. Weight gain has been a huge challenge for J and he had a G-tube placed in March '06. He has trigger thumb (repaired), a wandering eye, and allergies to peanuts, milk, and soy. Allergies to wheat and oats have been resolved. He's a very happy guy and doing great!
Feel free to drop me an e-mail! wendijo24@yahoo.com
 

 

I'm readin' here!

 

First day of school!

 
10/15/05 UPDATE Jackson is now pulling to stand! Woo Hoo! We are still working on balance, but it's coming! He's sitting for longer periods of time without support. We bought him a Fisher Price walker that converts into a bike and he sits on it unassisted for close to 10 minutes. The steering wheel and buttons keep him very entertained!

He gives "five" and opens/closes his mouth when we ask him what a fishie says. It's very cute! We are working on sign language. Jackson imitates the sign for "eat" and we are practicing "more" and "all done".

Since Jackson has been switched to Elecare formula (due to allergies) weight has been coming on like gangbusters!


12/13/05 Jackson visited to GI clinic last week and has lost weight due to a bout of croup. The GI doc is concerned about J's weight, saying that "he's the weight of a 6 month old." The Dr. put him on an appetite stimulant, but as it turns out J is allergic to it. We've increased the concentration of his formula, but if he does not gain weight by the end of January, we may be looking at an NG tube. He would be drip fed at night to help him gain weight.

Jackson is now crawling on his hands and knees more often, rather than commando crawling. He's pulling up to stand and cruising a little at the couch. He's able to get down without falling now. He's imitating gestures to "So Big." It's adorable!

12/30/05 Jackson had a great Christmas, in spite of having the flu most of last week. He got way too many toys, but is having a blast exploring them. His favorites are the train table Grandpa made him and his Fisher Price Castle!

He's lost some weight due to his flu, so hopefully, we can get some back on him before his GI appointment at the end of January. We want to do what we can to avoid the possibility of tubing.

His trigger thumb and birthmark removal surgeries are scheduled for February 10th. They will be done at the same time and the two surgeons are brother and sister. Crazy, but I'm sure they will work well together!

1/4/06 Now we are in for trouble! Jackson can climb stairs! He went all the way up, with me hot on his heels, looking for daddy! He just continues to amaze us!

1/15/05 Check my newly added "Journal" section for the latest updates!
 

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Fun Facts
I am 1435 days old!
I'm Turning FOUR soon!!
My Birthstone is Ruby (Contentment)
My Flower is Larkspur or Water_Lily (Green, Russet and Red )
My Astrological Sign is Leo
I was born in the Chinese Year of The Monkey
I will start kindergarten in 2009,
be old enough to drive a car in 2020,
and will graduate High School with the Class of 2022
The meaning of the name Jackson
See what else happened on my birthday!

Our Favorite Links:
Living with Trisomy

Unique
Trisomy Listserv
SOFT
Noah's Neverending Rainbow

This web page was created at BabiesOnline.com
Last updated Monday, June 30, 2008
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